My Health Journey Lately 💛

 

The past few months have been a whirlwind—emotionally, physically, and mentally—but I wanted to share a little bit of what's been going on.

I was recently accepted into the Riley Hospital for Children's Adult Spina Bifida Program after waiting for about 6 months to get in, and it’s been life-changing already. For the first time in a long time, I feel like I’m in the hands of doctors who truly understand Spina Bifida—not just the condition, but the day-to-day reality of living with it.

Since joining the program, we’ve uncovered a lot. I found out that I have small kidneys and kidney stones. Currently, I have an 11mm kidney stone in my left kidney and a 3mm stone in the right. I found all of this out just a couple of days before the fair started. I then ended up with an infection. Thankfully, an antibiotic helped clear things up, but I was miserable for the first few days of the fair.

I didn’t know I had these kidney stones at all. I’ve always had lower back pain but didn’t realize I was walking around with these things. Over the last week, I’ve experienced more pain and discomfort. Today I had another scan, and tomorrow I meet with the urologist to talk through next steps and surgery.

This past Monday I had an MRI that revealed a lot of stuff that I don’t fully understand yet, but the overall takeaway from the report is that I have a tethered spinal cord and a mass. It's a lot to process—and honestly, overwhelming at times—but also, it’s a step toward answers and a better quality of life.

In September, I meet with a neurologist, who I’m really hopeful about. From everything I’ve heard, his mission is to improve the quality of life for his patients—and just hearing that gave me a renewed sense of hope.

This journey hasn’t been easy. There have been scary moments and emotional ones. But I’m incredibly grateful for the dedicated, educated doctors who are not only helping me manage symptoms but also teaching me so much more about my condition than I ever knew.

Most of all, I’ve placed my hope and faith in the Lord through all of this. He has been my strength when I’ve had none of my own, and I truly believe He’s been guiding each step—opening the right doors, placing the right people in my path, and giving me peace in the middle of the unknown. I lean on Him every day, and I know I’m not walking this road alone.

Thank you to everyone who’s checked in, offered support, or just listened. I’ll keep sharing as I go—because this journey is far from over, but I’m walking it with more clarity, strength, support, and faith than ever before. 💪💛

xoxo,

Krista